My tribe... since my last post, I have had an angiogram and have met with a cardiac surgeon here in Des Moines. Unfortunately, local cardiac surgeons - as well as those with the University of Iowa - have declined to accept my case and perform the much needed mitral valve replacement surgery on my heart. Props to these surgeons, who are willing to place their egos aside, and recommend that I travel to the experts - those that see more than just one of "me" and my particular complications in their entire career. (Complications are mainly around my Ehlers-Danlos Syndrome).
So... it's off to Mayo Clinic in Rochester, MN we go!
I was able to chat with Mayo Clinic Cardiac Valve Clinic scheduling today... I'll be seen on Wednesday, May 15th and Thursday, May 16th. The first day, I'll have additional cardiac testing completed and then, the second day, I will be seen by a cardiologist and a cardiac surgeon.
On Facebook this evening, I posted a plea, looking for recommendations for free or cheap lodging for us on May 15th. A member of our tribe (who wishes to remain anonymous) answered our prayer to the universe... they are using their Marriott Reward points to cover the costs of our hotel. The hotel, which is nicely appointed, is quite close to the Mayo Clinic Hospital - St. Mary's - which is where we'll be spending most of our time this upcoming trip. What an amazing, generous gift that a mere "thank you" feels so inadequate.
Tonight, I cried tears of joy. I was overwhelmed by the generosity and feelings of gratitude.
Thank you for tuning in for another update and continuing to support me on this journey. Hugs & love to you my tribe! <3